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Clinerion Ltd
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Main address:
Margarethenstrasse 47
4053
Basel, Switzerland
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Tel:+41 61 865 60 60 ,
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Clinerion Patient Network Explorer
Clinerion Patient Network Explorer
Optimized study design, precise site selection and faster patient search and identification for clinical research - in real time.
Investigation Of The Estimated Regional Distribution of Transthyretin Familial Amyloid Polyneuropathy (TTR-FAP) Disease In Konya
Poster by Sinan Fındık
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TTR-FAP disease is an adult-onset severe autosomal dominant hereditary neuropathy. This study was planned to understand the epidemiology of TTR-FAP among patients who applied to Konya Selçuk University, and to determine the geographical distribution of this disease at local level data of province in RWE concept. With this research, it was aimed to increase the awareness of clinicians in Turkey about TTR-FAP disease and to obtain epidemiological data of TTR-FAP patients in Turkey. This RWE study was designed as a retrospective, single-center, longitudinal descriptive study; and aims to assess geographical distribution of probable TTR-FAP cases, where country-level epidemiological data is limited. Real-world data obtained from routine clinical practices at Selçuk University Hospital, between the years 2009 and 2018, in Konya province in Turkey were analyzed. The data was collected from HIMS in accordance with the Clinerion data structure. Please fill in the form below to gain access to this poster. |
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